Dementia Caregiving
Caring For a Parent or Loved One With Dementia
Dementia caregiving can seem like an impossible task. The anger, anxiety, and confusion accompanying dementia can lead to bold and unpredictable demeanor from your loved one. Especially when the disease has reached the mid to late stage, behavioral concerns become dominant and, for many caregivers, a challenge to manage. We have a few suggestions for managing the onset of temperament changes that are symptomatic of dementia.
Communication is key
Communication between caregiver and patient or loved one is at the root of this necessary dynamic. To accept and understand why a person with dementia acts as they do, it is imperative to navigate how they communicate. Remember, dementia has induced changes in the brain that affect everyday life.
What to do with aggressive behavior
DO: Determine the cause of the aggression. If the reason is physical, implement a resolution to the pain promptly. Is the aggression more emotional? Think about your loved one's demeanor when the aggression isn't present. For example, do they find solace in a quiet space? Does calm, rational conversation help, or does it evoke a more heated response? Think it through and modify your reaction accordingly.
DON'T: Insist that your loved one does anything they don't understand or accept. It is helpful to remember that aggression is often a reaction to fear. It is typical to induce a physical response by pushing the person with dementia to move forward with an uncomfortable task. It may seem counterproductive, but removing yourself from the situation may be best until your parent or loved one finds a more manageable place.
How to handle spatial confusion and fear
DO: Choose a direction most aligned with the person's nature. For example, it may be reassuring to meet them where they are at and offer substantial explanations; go with them, emotionally or physically, to the places they find comfort. This may include memories, music, and old photos. Let them live where they are in their minds. If not, try to divert the person to a different activity or direction. For example, invite them to partake in an appropriate physical or cognitive activity they would enjoy. Even if your solution is a white lie, it can provide temporary emotional consolation to your loved one.
DON'T: Try to plead with the person. Unfortunately, it's almost unattainable to reason with a parent who has dementia. Oftentimes, reasoning with your loved one causes the issue to evolve more significantly. Additionally, speak with kindness, patience, and compassion to your parent; direct with love to avoid confrontation.
Navigating late-stage dementia paranoia and accusations
DO: Offer simple answers to accusations or confusion. People with late-stage dementia suffer from what seem to be unreasonable paranoia and indictments. When feasible, divert them to an engaging activity. Assure your loved one they are safe, and offer comfort to them at a level they are satisfied accepting.
DON'T: Provide long answers, as this may upset your loved one additionally. As mentioned previously, it is counterproductive to reason with a parent suffering from dementia. While challenging, try to remain neutral and realize their reactions to your efforts are not a personal attack.
Ask for help
Though dementia caregiving is likely one of the most challenging situations, it doesn't need to be a solitary time of transition. Instead of internalizing the emotional fatigue, reach out for help. With the increasing global diagnosis of dementia also comes an abundant amount of support. This could be an online support group, consistent self-care by means of physical and emotional activities, or reaching out to a team of professionals.
Have an inquiry or observation? We are just a phone call away; please reach out for support. You are not alone.
